Educational Resources

The following resources can be used when training staff involved with newborn screening.

Dried blood spot sample collection

• Dried Blood Spot e-Learning Module
  • E-learning module about the newborn screening dried blood spot sample: submitter responsibilities, timing and collection procedures, and results.
• Dried Blood Spot Module Post-Quiz 
  • Quiz to accompany the Dried Blood Spot e-Learning Module
• Dried Blood Spot Module Post-Quiz Answers
  • Answer key for quiz
• Dried Blood Spot Collection Tip Sheet
  
  • One-page tip sheet outlining the steps to obtain a newborn screening sample
• What Makes a Satisfactory Newborn Screen?
  • PDF module outlining steps to collect a satisfactory newborn screening sample
• Video: Newborn Screening Sample Collection 
  • Video outlining best practices for newborn screening sample collection in Ontario.
• Decline/Defer Form
  • Page of dried blood spot collection card, to be completed when parents/guardians decline newborn screening

Sample collection considerations: Transfusions and TPN

• Tip Sheet: Transfusions and Newborn Screening Sample Collection
  • Tip sheet with recommendations for newborn screening sample collection in infants who require a red blood cell transfusion.
• Video: Transfusions and Newborn Screening Sample Collection
  • Recommendations for newborn screening sample collection in infants who require a Packed Red Blood Cell (PRBC) or other red blood cell transfusion.
• Video: Total Parenteral Nutrition (TPN) Holds
  • Recommendations for TPN holds prior to the collection of newborn screening specimens

Resources for parents/guardians

The following resources can assist with educating parents/guardians around newborn screening.

• Prematurity Information Sheet
  • For parents of newborns born significantly premature or very low birth weight
• Transfusion Information Sheet
  • For parents of babies who require a blood transfusion
• Newborn Screening: FAQ
  
  • An FAQ sheet for parents regarding newborn screening
• Newborn Screening in the NICU: FAQ
  • An FAQ sheet for parents regarding newborn screening in the NICU
• Tip Sheet for Health Care Providers: Discussing the Dried Blood Spot Screen
  
  • Guidance on discussing newborn screening with families
• Tip Sheet for Health Care Providers in the NICU: Discussing the Dried Blood Spot Screen and Disclosing Positive Results 
  • Guidance on discussing newborn screening with families in the NICU and disclosing positive results

Other forms and resources

• Video: Accessing Newborn Screening Results in OLIS
  • A recorded webinar discussing the provincial Clinical Viewers, OLIS, and how to set these up to access newborn screening results in a timely manner
  • Link to set up OLIS access: ConnectingOntario ClinicalViewer | eHealth Ontario | It's Working For You
• Video: Newborn screening best practices: Improving accuracy and outcomes
  • A recorded webinar discussing best practices in newborn screening, including dried blood spot sample collection, handing out the biliary atresia Infant Stool Colour Card, and when to perform the CCHD screen